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PODS (Parents Opening Doors)

Parent Carer Forum

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National Links

Autismlinks
Autismlinks is dedicated to making those helpful and sometimes vital links, it covers who to talk to, where to go and contains lots of helpful advice all in one place. For more information visit their website http://www.autismlinks.co.uk/

Barchester's Charitable Foundation

Barchester's Charitable Foundation fund, Older people 65+, Adults (18+) with a physical or learning disability, Adults (18+) with mental health problems. Barchester's Charitable Foundation are a unique charity that helps individuals, but please note that all applications for named individuals must be completed by a third party who knows the individual in a professional or community-based capacity. This could be a Barchester staff member, healthcare professional, a social or citizens' advice worker or a charity representative for example. Any application submitted by the named individual or family will not be processed.
They also help small community groups and small local charities. They help people and groups based in England, Scotland and Wales, for more information, please see their website: https://www.bhcfoundation.org.uk/who-we-fund-2018-focus

Carers UK - The State of Caring Annual Survey

The State of Caring Annual Survey has been released from Carers UK and contents of this report include reference to parent carers. The content of the report includes impact on health and wellbeing , Practical support with caring, Costs, cuts and closures, Experiences of Carer’s Assessments, the Costs of caring, Juggling work and care and Expectations for the future.

The survey was shared Nationally and through PODS Forum earlier in the year and we would like to thank you if you had any input into it.

This National Report has already been highlighted at the Carers Partnership Board in Telford & Wrekin where PODS Forum are represented https://www.carersuk.org/for-professionals/policy/policy-library/state-of-caring-2018-2

Cerebra
Charity supporting families of children who have a brain condition. Useful information on deciding whether to take part in research about families of children with learning disabilities, Problem solving toolkit & a directory for finding legal advice for families of a child with a disability.
http://w3.cerebra.org.uk/
01267 244200

Contact A Family
National organisation that supports families of children with a disability across the UK, whatever their condition or disability.
www.cafamily.org.uk
Free helpline: 0808 808 3555

Council for Disabled Children - Latest Newsletter September 2017

http://mailchi.mp/ncb/disabled-childrens-partnership-launches-and-much-more-1293789?e=bbe43b7f76

Council for Disabled Children
Council for Disabled Children, are the umbrella body for the disabled children’s sector bringing together professionals, practitioners and policy makers. Their website offers lots of resources and help.
https://councilfordisabledchildren.org.uk/
In January 2017, they held a CDC SEND conference, below are some of the resources from that conference:

An update from DfE - January 2017

Ofsted Local Area SEND inspection - January 2017

What does the National SEND picture look like across Health

Workshop - Children and Young People's Continuing Care - January 2017

Workshop - Developments in SEN and Disability Law

Workshop - Disabled Children Living Away From Home

Council for Disabled Children EHCP Guide
This guide from Council for Disabled Children may help you in the process of your EHCP and/or Annual Review.  It shows best practice examples from across a whole range of plans and gives a broad range of examples that are explained in a straight forward manner.

EHCP Exemplar Guide 2017

Council for Disabled Children – Digest - Summer 2018
CDC's latest Digest has been released, featuring news from across the sector.
In this issue you will find the CDC Stakeholder Survey, Secretary of State’s speech to ADCS, The TES SEN Show 2018, New IAS Programme and lots more.

https://councilfordisabledchildren.org.uk/sites/default/files/field/attachemnt/Summer%20Digest%202018%20final.pdf

Department for Education SEND Newsletter – March 2018
Please click on the following link, for the March 2018, Department for Education SEND Newsletter, the March edition can be found part way down the page, March 2018 edition of the Department for Education’s 0-25 SEND Newsletter

Disability Rights UK
Disability Rights UK are disabled people leading change, working to create a society where everyone with lived experience of disability or health conditions can participate equally as full citizens.
https://www.disabilityrightsuk.org/

Ehlers-Danlos Support UK
EDS UK support, advise and inform those living with Ehlers-Danlos syndrome, they are the only UK based charity that exclusively represents and supports people with all types of EDS.
Freephone helpline: 0800 907 8518 / Telephone: 020 8736 5604
www.ehlers-danlos.org

ERIC - The Children's Bowel & Bladder Charity
ERIC is the only charity dedicated to the bowel and bladder health of all children and teenagers in the UK. Their vision is that every child and teenager with a bowel or bladder condition can access support and live free from embarrassment, shame, isolation and fear.
Helpline: 0845 370 8008
www.eric.org.uk
ERIC's First Regional Roadshow - ERIC Regional Roadshow 2017

Family Fund
Family Fund is the UK’s largest charity providing grants for families raising disabled or seriously ill children and young people. They believe that all families raising disabled or seriously ill children and young people should have the same opportunities as others, for more information visit their website: https://www.familyfund.org.uk/

IPSEA
Independent parental special education advice & resources
https://www.ipsea.org.uk/

Leneham Report on Residential Special Schools and Colleges
The Leneham Report on Residential Special Schools and Colleges has been published. This report by Dame Christine Lenehan and Mark Geraghty sets out: How children and young people with special educational needs and disability (SEND) are currently supported in residential special schools and colleges and recommendations to support children, young people and their families to improve their experiences and outcomes. The government’s response is also available https://www.gov.uk/government/publications/residential-special-schools-and-colleges-support-for-children

Mencap
Advice and support for people with learning disabilities and their families.
https://www.mencap.org.uk/
Mencap Direct – Advice & support line: 0808 808 1111

Network Autism - A Holiday Guide for Autism
Network Autism have put together a useful holiday guide for autism.
Whilst it says autism there might be some top tips that help children with wider disabilities and needs.
https://network.autism.org.uk/sites/default/files/ckfinder/files/Summer%20holidays%202018%20final(1).pdf

NHS England
Information on care for those with learning disabilities and/or autism.
https://www.england.nhs.uk/learning-disabilities/

NICE
National Institute for Health and Care Excellence
https://www.nice.org.uk/

Options Group
Options group is a national provider of care and education to children, young people and adults with autism, complex needs, and behavioural, emotional and social
www.optionsgroup.co.uk
01952 468220

PDA Society
The PDA Society was first established in 1997 by parents of children with Pathological Demand Avoidance (PDA), an autism spectrum condition.  PDA Society provide information, support and training for parents, carers, teachers and individuals with PDA.    https://www.pdasociety.org.uk/

SENAD Group
Specialist education, transition services, and supported living for people with autism, learning difficulties, challenging behaviour and mental health needs.
www.senadgroup.com
01332 378 840

SENDirect
National service to help families find the right support, services and information for their needs.
https://www.sendirect.org.uk/
0207 7608 8772

Scope
Charity that supports people who have a physical impairment, learning disability or any other condition.
www.scope.org.uk
0808 800 3333

The Hoffmann Foundation for Autism Prize Competition and Exhibition 2018/19
The Hoffmann Foundation for Autism has been providing an art service for adults with asc since 1991 and providing a competition since 2009. Realistic cash prizes are offered in order to attract high quality entrants but all work that is sent to them will be exhibited and apart from the entry fee (£10 per picture) there are no other costs to the artists (no commission on sales for example).
It is being held at the Bruce Castle Museum and Gallery
From Wednesday 14th November 2018 until Thursday 28th February 2019
Submissions must be in by Wednesday 31st October 2018

For Entry Forms and Info Pack please send a large envelope (to take A4 sized documents) with your address and the right stamp on it and you will be sent the Info. Pack by return. For a concise version of the Entry Form, Rules of the Competition, How to get to the Gallery etc. mail: art@hfa.org.uk
The Exhibition Coordinator,
2 Park Avenue, Wood Green, London N22 7EX
First Prize £500.00
Second Prize £350.00
Third Prize £150.00
Provided by the Shirley Foundation
The PJR Creative Building Prize
First Prize £250.00
Second Prize £150.00
Third Prize £100.00
Provided by PJR Creative Building
The Lillie Portrait Prize
£200.00
Anonymous Donor

Phone 020 8881 8638 for general enquiries
E-mail: art@hfa.org.uk for downloads.
You can visit between 15.00-16.00 weekdays to pick up forms etc.
Hoffmann Foundation for Autism Limited. Registered in England and Wales No.2169783
Registered Charity Number 298166 Registered Office as above

Entry Form 2018  Introduction to the Competition Rules of the Competition

Together for Short Lives
Together for Short Lives is a leading UK charity for children with life-threatening & life-limiting conditions.
www.togetherforshortlives.org.uk
0808 8088 100

Turn2us
Turn2us is a national charity that helps people in financial hardship to gain access to welfare benefits, charitable grants and support services – online & by phone
https://www.turn2us.org.uk/

Waving not Drowning
The Waving not drowning project provides a helpline, newsletter, e-bulletin and occasional events and publications for parents of disabled children and carers of adults who want to combine paid work with their caring responsibilities. The helpline for questions about work and caring is 0300 012 0312. Waving not Drowning also have a Facebook page where parent/carers can get support, share their experiences, and ask questions: https://www.facebook.com/groups/wavingnotdrowning/ for further information please click on the following link: https://www.workingfamilies.org.uk/articles/wavingnotdrowning/