PODS (Parents Opening Doors)

Parent Carer Forum

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National Links

Autismlinks
Autismlinks is dedicated to making those helpful and sometimes vital links, it covers who to talk to, where to go and contains lots of helpful advice all in one place. For more information visit their website http://www.autismlinks.co.uk/

Cerebra
Charity supporting families of children who have a brain condition. Useful information on deciding whether to take part in research about families of children with learning disabilities, Problem solving toolkit & a directory for finding legal advice for families of a child with a disability.
http://w3.cerebra.org.uk/
01267 244200

Contact A Family
National organisation that supports families of children with a disability across the UK, whatever their condition or disability.
www.cafamily.org.uk
Free helpline: 0808 808 3555

Council for Disabled Children - Latest Newsletter September 2017

http://mailchi.mp/ncb/disabled-childrens-partnership-launches-and-much-more-1293789?e=bbe43b7f76

Council for Disabled Children
Council for Disabled Children, are the umbrella body for the disabled children’s sector bringing together professionals, practitioners and policy makers. Their website offers lots of resources and help.
https://councilfordisabledchildren.org.uk/
In January 2017, they held a CDC SEND conference, below are some of the resources from that conference:

An update from DfE - January 2017

Ofsted Local Area SEND inspection - January 2017

What does the National SEND picture look like across Health

Workshop - Children and Young People's Continuing Care - January 2017

Workshop - Developments in SEN and Disability Law

Workshop - Disabled Children Living Away From Home

Council for Disabled Children EHCP Guide
This guide from Council for Disabled Children may help you in the process of your EHCP and/or Annual Review.  It shows best practice examples from across a whole range of plans and gives a broad range of examples that are explained in a straight forward manner.

EHCP Exemplar Guide 2017

Disability Rights UK
Disability Rights UK are disabled people leading change, working to create a society where everyone with lived experience of disability or health conditions can participate equally as full citizens.
https://www.disabilityrightsuk.org/

Ehlers-Danlos Support UK
EDS UK support, advise and inform those living with Ehlers-Danlos syndrome, they are the only UK based charity that exclusively represents and supports people with all types of EDS.
Freephone helpline: 0800 907 8518 / Telephone: 020 8736 5604
www.ehlers-danlos.org

ERIC - The Children's Bowel & Bladder Charity
ERIC is the only charity dedicated to the bowel and bladder health of all children and teenagers in the UK. Their vision is that every child and teenager with a bowel or bladder condition can access support and live free from embarrassment, shame, isolation and fear.
Helpline: 0845 370 8008
www.eric.org.uk
ERIC's First Regional Roadshow - ERIC Regional Roadshow 2017

Family Fund
Family Fund is the UK’s largest charity providing grants for families raising disabled or seriously ill children and young people. They believe that all families raising disabled or seriously ill children and young people should have the same opportunities as others, for more information visit their website: https://www.familyfund.org.uk/

IPSEA
Independent parental special education advice & resources
https://www.ipsea.org.uk/

Leneham Report on Residential Special Schools and Colleges
The Leneham Report on Residential Special Schools and Colleges has been published. This report by Dame Christine Lenehan and Mark Geraghty sets out: How children and young people with special educational needs and disability (SEND) are currently supported in residential special schools and colleges and recommendations to support children, young people and their families to improve their experiences and outcomes. The government’s response is also available https://www.gov.uk/government/publications/residential-special-schools-and-colleges-support-for-children

Mencap
Advice and support for people with learning disabilities and their families.
https://www.mencap.org.uk/
Mencap Direct – Advice & support line: 0808 808 1111

NHS England
Information on care for those with learning disabilities and/or autism.
https://www.england.nhs.uk/learning-disabilities/

NICE
National Institute for Health and Care Excellence
https://www.nice.org.uk/

Options Group
Options group is a national provider of care and education to children, young people and adults with autism, complex needs, and behavioural, emotional and social
www.optionsgroup.co.uk
01952 468220

PDA Society
The PDA Society was first established in 1997 by parents of children with Pathological Demand Avoidance (PDA), an autism spectrum condition.  PDA Society provide information, support and training for parents, carers, teachers and individuals with PDA.    https://www.pdasociety.org.uk/

SENAD Group
Specialist education, transition services, and supported living for people with autism, learning difficulties, challenging behaviour and mental health needs.
www.senadgroup.com
01332 378 840

SENDirect
National service to help families find the right support, services and information for their needs.
https://www.sendirect.org.uk/
0207 7608 8772

Scope
Charity that supports people who have a physical impairment, learning disability or any other condition.
www.scope.org.uk
0808 800 3333

Together for Short Lives
Together for Short Lives is a leading UK charity for children with life-threatening & life-limiting conditions.
www.togetherforshortlives.org.uk
0808 8088 100

Turn2us
Turn2us is a national charity that helps people in financial hardship to gain access to welfare benefits, charitable grants and support services – online & by phone
https://www.turn2us.org.uk/

Waving not Drowning
The Waving not drowning project provides a helpline, newsletter, e-bulletin and occasional events and publications for parents of disabled children and carers of adults who want to combine paid work with their caring responsibilities. The helpline for questions about work and caring is 0300 012 0312. Waving not Drowning also have a Facebook page where parent/carers can get support, share their experiences, and ask questions: https://www.facebook.com/groups/wavingnotdrowning/ for further information please click on the following link: https://www.workingfamilies.org.uk/articles/wavingnotdrowning/