Tics & Tourettes
In 2023, Lisa launched a dedicated Tics & Tourettes Support Group in partnership with PODS and initially Tourettes Action, with the aim of offering guidance, connection, and understanding to families navigating life with a child diagnosed—or suspected to have—Tourette Syndrome.
A little bit about Lisa and why she created this group, with the support of Tourettes Action and PODS.
In 2022 her son who was 7 at the time received a diagnosis of Tourette syndrome. After years of her noticing tics, twitches and managing some challenging behaviours she finally had some understanding behind them.
She found the Tourettes Action Helpline advice so valuable that she looked to be able to access something regular, closer to home where she might connect with other families navigating similar situations. When she found nothing locally she spoke to PODS and together we have worked at getting a group started, based at the PODS Hub on Central Park.
As the groups have progressed, we have met some amazing families, and are privileged to have been part of the Tourettes Action Support. However, for several reasons running the in-person groups has been challenging, and I have felt that I can offer more in the way of support through my parent rep role at PODS. Being available online, and available to offer specific befriending type support when it’s needed. Liaising with the LA and Healthcare alongside working with schools to help them gain more understanding around Tourettes Syndrome.
Lisa is now offering support, advice and information around Tics and Tourettes alongside PODS. She is happy to liaise with schools, SENCO, parents, carers and the LA.
Lisa now either offers or hopes to provide:
Online and one-to-one befriending-style support
Liaison with schools, SENCOs, and the LA as required
Collaboration with healthcare professionals
Resources and advice for parents and carers
Help with understanding diagnosis and navigating services
Whether you’re seeking information, struggling with school recognition, or simply want to connect with others who understand, Lisa is here to help.
Contact Lisa: ticstourettes@podstelford.org 
PODS Hub, 1 Hawksworth Road, Central Park, Telford, TF2 9TU
PODS Team: 01952 458047